Bruno Saraiva [master’s student in European Union Law and Digital Citizenship & Technological Sustainability (CitDig) scholarship holder]
I.
Henrietta Lacks is a relatively obscure name, but one that is representative of the extraordinary impact an individual can have on human achievements, despite their recognition, in life and after death. Her legacy is one of immortality, a unique form of it: books have been written about her, her story is widely discussed, and her very cells are studied daily. Fragments of her body remain alive and will likely persist as long as modern civilisation endures.
Henrietta Lacks died in 1951, at the age of 31. Her passing would come from an extremely aggressive form of cervical cancer. An African American woman, she was born and laboured on her family’s tobacco farm, until the rising fortunes of post war America carried her to Baltimore where she would pass away, leaving her husband and five children. Neither her nor her loved ones would know the significance of her contribution to humanity. Glimpses would only come decades later, when her children’s lives were disrupted by researchers seeking medical data and tissue samples, while steadfastly refusing to divulge the intention behind their actions. Only in 1975, during a chance dinner conversation, would the Lacks family realise Henrietta’s enduring importance.
Continue reading “Opinion on Opinion 28/2024 of the European Data Protection Board (EDPB): the HeLa of the mind (on the unknowing immortality of online language)”








